Books

On Fibromyalgia And Related Conditions

 

A publication of the National Fibromyalgia Partnership, Inc.

*   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *   *  

 
 

Note: The National Fibromyalgia Partnership (NFP) offers the enclosed list of books as a public information service and receives no remuneration for any entry in this guide. The listed prices are based on information available from publishers and are subject to change. When ordering from publishing houses located in your home state, be sure to add appropriate sales tax.

(Above graphic: © Copyright 2009, Maa-illustrations \ Dreamstime.com)

 

 

General Guides To Fibromyalgia & Chronic Pain

 

Fibromyalgia for Dummies

By Roland Staud, M.D., with Christine Adamec (Wiley Publishing, Inc., 2002)

Widely respected researcher/rheumatologist Roland Staud, M.D., has compiled an easy-to-use guide on the symptoms of and treatments for fibromyalgia which is true to the spirit of previous "For Dummies" books. He cites two goals for his book: to demonstrate that fibromyalgia pain is real and to provide current information on medications, lifestyle changes, and other treatment options. This book offers not only general coping techniques but also specific strategies for those unable to work full-time, for family members or friends of individuals with fibromyalgia, and for parents whose child has fibromyalgia. Although some of the information is basic, both newly diagnosed and long-time sufferers will find beneficial material in this thorough guide to easing the pain. [319 pages with appendices, softcover, $21.99. Available in many bookstores and online.]

 

Fibromyalgia & Other Central Pain Syndromes

Edited by Daniel J. Wallace & Daniel J. Clauw (Lippincott, Williams & Wilkins, Publishers, 2005)

This new book contains a broad range of material contributed by leading medical research and clinical experts in the field of fibromyalgia and chronic pain. Recommended for more advanced readers. [421 pages, hardcover, $79.95 plus shipping/handling. To order, visit the Lippincott Williams & Wilkins' online store at: www.lww.com and search for: product/?0-7817-5261-2, or phone customer service toll-free at: (800) 639-3030.]

Contents include: The History of Fibromyalgia (Daniel J. Wallace) • The Taxonomy of Chronic Pain: Moving Toward More Mechanistic Classifications (Daniel J. Clauw) • The Epidemiology of Chronic Widespread Pain and Fibromyalgia (John McBeth) • The Concept of Central Sensitivity Syndromes (Muhammad B. Yunus) • The Neurobiology of Chronic Musculoskeletal Pain—Includes Chronic Regional Pain (Roland Staud) • Neurotransmitters, Cytokines, Hormones, and the Immune System in Chronic Nonneuropathic Pain (I. Jon Russell) • Dysfunction of the Autonomic Nervous System in Chronic Pain Syndromes (Manuel Martínez-Lavín) • Functional Imaging of Pain (Richard H. Gracely and Laurence A. Bradley) • Muscles and Peripheral Abnormalities in Fibromyalgia (Haiko Sprott) • Sleep and Its Potential Role in Chronic Pain and Fatigue (Harvey Moldofsky and James G. MacFarlane) • Symptoms and Signs of Fibromyalgia Syndrome: An Overview (Muhammad B. Yunus) • Neurologic Features of Fibromyalgia (Robert Bennett) • Myofascial Pain Syndromes of the Head and Face (Eli Eliav and Rafael Benoliel) • Psychosocial Factors in Fibromyalgia (Laurence A. Bradley and Graciela S. Alarcön) • Fibromyalgia in Children (David D. Sherry) • Fibromyalgia in Inflammatory and Endocrine Disorders (David S. Hallegua) • Chronic Fatigue Syndrome (Atul Deodhar) • The Functional Bowel Disorder Spectrum (Lucinda A. Harris and Lin Chang) • Genitourinary Associations with Fibromyalgia (Daniel J. Wallace and Swamy Venuturupalli) • Chronic Low Back Pain (Thorsten Giesecke and Michael E. Geisser) • Reflex Sympathetic Dystrophy Syndrome (Franklin Kozin) • The Role of Trauma in Chronic Neuromuscular Pain (Samuel A. McLean, Daniel J. Clauw, and David A. Williams) • Controversial Syndromes and Their Relationship to Fibromyalgia (Swamy Venuturupalli and Daniel J. Wallace) • The Evaluation of Individuals with Chronic Widespread Pain (Daniel J. Clauw) • The Differential Diagnosis of Chronic Regional Pain (Kevin P. White) • Assessment Tools and Outcome Measures Used in the Investigation of Fibromyalgia (Stuart L. Silverman and Susan A. Martin) • Lifestyle and Environmental Interventions in Fibromyalgia and Related Conditions (Stephanie A. Bolling and Thomas M. Susko) • The Use of Exercise and Rehabilitation Regimens (Kaisa Mannerkorpi and Maura Daly Iversen) • Cognitive and Behavioral Approaches to Chronic Pain (David A. Williams) • Local Therapy for Fibromyalgia and Nonneuropathic Pain (Lan Chen, Jodi Goldman-Knaub and Sally Pullman-Mooar) • Systemic Therapies for Chronic Pain (Lesley M. Arnold) • Complementary and Alternative Medicine for Fibromyalgia (Edzard Ernst) • The Economic Impact of Fibromyalgia on Society and Disability Issues (Daniel J. Wallace) • Prognosis (Arash A. Horizon and Michael H. Weisman) • Future Research Directions (Leslie J. Crofford). 

 

From Whiplash to Fibromyalgia: A Painful Beginning That Doesn't End

By Mark Pellegrino, M.D. (ORC Publishing, LLC, 2002)

A closeup look at the mechanics of whiplash injury with a full discussion of post-traumatic fibromyalgia by a leading expert in the field of post-traumatic fibromyalgia. [130 pages, softcover. Available for sale from the National Fibromyalgia Partnership, Inc. Member price: $7; Non-Members $9 — U.S. postage/handling included in price. Send check or money order payable to "NFP, Inc." to: P.O. Box 160, Linden, VA 22642, or order from the NFP website at www.fmpartnership.org (Visa/Mastercard/Discover accepted.]

 

Fibromyalgia & Chronic Myofascial Pain: A Survival Manual—Second Edition

By Devin Starlanyl & Mary Ellen Copeland (New Harbinger Publications, 2001)

Twenty-eight chapters and three appendices provide a wealth of highly relevant material on two medical conditions, fibromyalgia and chronic myofascial pain, which frequently occur together. This book is very reader-friendly and offers supplemental anatomical diagrams and references which greatly enrich its content. [Available at www.amazon.com and at selected bookstores]

 

The Fibromyalgia Advocate: Getting The Support You Need To Cope With Fibromyalgia And Myofascial Pain Syndrome

By Devin J. Starlanyl, M.D. ((New Harbinger Publications, 1998))

Although an earlier publication than the one listed above, this book on fibromyalgia and myofascial pain syndrome, is unique in offering a wide range of self-help information and medical, legal, and financial resources. Of special interest is Chapter 7 which contains a large number of fact sheets (now quite well known in the FM community) designed for patients to share with all different types of medical/dental specialists to familiarize them with fibromyalgia and suggest how they might best approach FM patients when treating them in their practive. Examples of medical professionals targeted are: primary care physicians, cardiologists, chiropractors, dentists, dermatologists, emergency room staff, ENTs, eye doctors, gastroenterologists, neurologists, and more. [Available at www.amazon.com and at selected bookstores]

 

The Fibromyalgia Syndrome: A Clinical Case Definition For Practitioners

I. Jon Russell, M.D., Ph.D., Editor (The Haworth Medical Press, 2003)

Recommended for both health care practitioners and patients, this book is actually a consensus document based on a meeting of an expert subcommittee of Health Canada. The text, which is authored by well-regarded authorities on fibromyalgia, covers signs and symptoms, pathophysiology, physical evaluations, treatment, and international research related to fibromyalgia. This softbound, 122-page book was originally co-published simultaneously as Journal of Musculoskeletal Pain (Vol. 11, Number 4, 2003), the official journal of the International Myopain Society. [Available at www.amazon.com ]

 

The Fibromyalgia Handbook: A 7-Step Program To Halt And Even Reverse Fibromyalgia

By Harris H. McIlwain, M.D., and Debra Fulghum Bruce, M.S. (Henry Holt and Company, 2003)

In this newly revised edition of his popular handbook, Dr. McIlwain offers a seven-step program that emphasizes the importance of seeking medical treatment, doing exercise, and decreasing stress to lessen symptoms. He discusses the latest in medications as well as several safe, alternative treatments, including massage, biofeedback, meditation, and herbal therapy. He includes a detailed discussion on good nutrition and offers diet ideas that may prove helpful in planning meals. [208 pages, softcover, $18.00. Available in many bookstores.]

 

Books On Chronic Pain

 

Soft Tissue Pain Syndromes: Clinical Diagnosis and Pathogenesis

By Dieter E. Pongratz, Prof. Dr. med.; Siegfried Mense, Prof. Dr. med.; Michael Spaeth, Dr. med. M.D.

This book is a collection of the finest presentations from the 2004 Sixth World Congress of the International Myopain Society (MYOPAIN 2004) held in Munich, Germany, where respected experts presented the state-of-the-art in pain mechanisms, myofascial pain syndrome, fibromyalgia syndrome, and inflammatory myopathies. Up-to-date innovative studies illustrate appropriate diagnostic approaches and latest practical treatments for soft tissue pain syndromes of all types. Recommended for more advanced readers. [134 pages, softcover. Available at www.amazon.com]

Presentations on myofascial pain syndrome included in the book are: Mechanisms of the Transition from Acute to Chronic Pain (Walter Zieglgänsberger) • New Aspects Of Myofascial Trigger Points: Etiological and Clinical (David G. Simons) • Differential Diagnosis of Trigger Points (Robert Gerwin) • Trigger Points as a Cause of Orofacial Pain (Sandro Palla) • Myofascial Pain Therapy (Chang-Zern Hong). Presentations on fibromyalgia included in the book are: Pain and the Neuroendocrine System (Gunther Neeck) • Developments in the Fibromyalgia Syndrome (I. Jon Russell) • Diagnostic Criteria and Differential Diagnosis in the Fibromyalgia Syndrome (Robert M. Bennett) • Fibromyalgia: Novel Therapeutic Aspects (Carol Burckhardt); • Fibromyalgia: Novel Drug Therapies (Leslie Crofford).

 

Muscle Pain—Understanding Its Nature, Diagnosis, and Treatment

By Siegfried Mense, Prof. Dr. Med.; David G. Simons, M.D.; and I. Jon Russell, M.D., Ph.D. (Lippincott, Williams & Wilkins, 2000)

Carefully constructed by three giants in the field of muscle and soft tissue research, this authoritative new textbook constructs a platform of medically-accurate information and thought-provoking discussion upon which future investigators and scholars can build. The authors provide precise definitions of the muscle terminology which has often been used carelessly and inaccurately in casual conversation. They also address such general topics as the relationship between acute and chronic pain, gender differences in the experience of pain, and difficulties in doctor/patient communication on the subject of pain symptoms. They then cover in greater depth the individual topics of local pain, neuropathic pain, referred pain, increased tension, reflexly mediated and postural pain, centrally modified pain, and myofascial pain--all in the context of muscle. A final comprehensive chapter on fibromyalgia by I. Jon Russell, M.D., Ph.D., is included. Each chapter presents a historical overview which assesses the theories and disagreements which have characterized its particular subject matter. Then, current research and new hypotheses are considered along with detailed information on pharmacologic therapies. Recommended for more advanced readers. [400 pages, hardback, $54.95. Available from the publisher's website, www.lippincott.com and from many bookstores.]

 

Pain Management For Older Adults: A Self-Help Guide

By Thomas Hadjistavropoulos & Heather D. Hadjistavropoulos, Eds.(IASP Press, 2008)

A self-help guide written by pain researchers and health care professionals and published by the International Association for the Study of Pain (IASP) to provide practical information and advice to older adults with chronic pain. The text is carefully and clearly written with chapter-long discussions of topics which often include useful charts and diagrams. This reader-friendly book, which is published in ample-sized print, has several strengths beginning with its sensitivity to older adults (not simply referring to them in the title as "seniors" as in other guides). It offers a balanced, constructive program for physical and psychological care; mind and body interconnectedness is stressed for successful pain management. Also important is its consideration of aging as a process that changes as one ages; the use of descriptive stereotypes and clichés is discouraged. Emphasis is given to realistic goals and resisting thoughts that bring on depression and despondency. [Softcover, 201 pp. Price: U.S. $29.95 (IASP members $25.95). Order online at: www.iasp-pain.org. Or write: IASP, 111 Queen Anne Avenue N., Suite 501, Seattle, WA 98109-4955.]

 

The Art of Body Maintenance: Winners' Guide to Pain Relief

By Hal Blatman, M.D., and Brad Ekvall, B.F.A. (Danua Press, LLC, 2006)

As described by Devin Starlanyl, respected author and authority on chronic myofascial pain and fibromyalgia: "This book is as important for the chronic pain patient as it is for the athlete. Imagine a world in which you have a body-worker on 24-hour call, and when you called, this therapist arrived immediately and could tell you exactly where the pain originated and what to do about it and how to prevent it from occurring in the future. This book will teach you how to be that therapist. This book is also an important time-saving tool for doctors, nurses, trigger point myotherapists, physical therapists, occupational and vocational therapists, massage therapists, and many other care providers as a neatly packaged ‘how-to’ book of exercise, pain control, and prevention. It is a book that can and should be used by anyone having muscle pain. This book does more than teach about myofascial trigger points (MTrPs). It teaches an integrated program of stretching, proper breathing, and ball acupressure. This book is written by a specialist in myofascial medicine, pain management, and integrative medicine. Dr. Blatman sees complex pain patients every day and enables them to improve their lives. He has put what you need to know into a wonderfully entertaining, informative, and well-illustrated book. Realistic cartoon figures illustrate how to stretch and move in a healthy way that is integrated with ball techniques. You will learn where the MTrPs are and what to do about them." (Note: Devin Starlanyl has no financial interest in this book or in the Blatman Pain Clinic.) [This book is available at: www.winoverpain.com]

 

You Don’t Look Sick! Living Well with Invisible Chronic Illness

By Joy H. Selak and Steven S. Overman, M.D., M.P.H. (Haworth Medical Press, 2005)

This book offers an insightful account of a patient’s journey through the three stages of chronic illness—getting sick, being sick, and living well. Joy H. Selak poignantly describes her day-to-day experiences with pain and how she copes. She addresses several important aspects of living with chronic pain, such as hiring a doctor, managing chronic pain, and coping with grief and the loss of function. Dr. Steven Overman offers his own personal and medical perspective on the important relationship between doctor and patient. Of this book, Dr. Roberto Patarca-Montero, author of Concise Encyclopedia of Chronic Fatigue Syndrome, writes: "A masterful, insightful, and useful account of the patient’s and physician’s perspectives, in their own words and frames of reference, on recognizing, confronting, and dealing with chronic pain…Will benefit not only patients with chronic illness, but also their health care providers and family members." [145 pages, softcover. Available at www.amazon.com]

 

Managing PAIN Before It Manages You

By Margaret A. Caudill, M.D., Ph.D. (The Guilford Press, 2002)

This newly revised and expanded edition teaches coping skills proven to decrease the discomfort, depression, and anxiety associated with chronic pain. It provides a wide variety of do-it-yourself techniques for dealing with chronic pain, as well as chapters on the psychology and the physiology of pain. While many of the coping strategies described can undoubtedly be found separately in other publications, this is quite a comprehensive collection. Of special interest to FM patients are the breathing exercises, cognitive therapy tasks, and the four-page "Dysfunctional Attitude Survey" which the author indicates should be "very valuable in identifying self-defeating attitudes". [232 pages, softcover, $21.95 plus shipping/handling. Order online at www.guilford.com, or phone: (800) 365-7006.]

 

A Delicate Balance: Living Successfully with Chronic Illness

By Susan Milstrey Wells (Perseus Publishing, 2000)

Susan Milstrey Wells has done an exceptional job of exploring the many facets of chronic illness in A Delicate Balance. Drawing on a wide range of disciplines, her own history with several medical conditions (including FM), and the insights and experiences of other patients, she takes an honest, unflinching look at chronic illness and the demands it places on us. She skillfully interweaves her own research with the personal narratives of patients, thus keeping the narrative engaging and fresh. Wells is no Pollyanna, however. She puts the ugly sides of chronic illness out into the light where we can all see them yet manages to draw constructive insights that we can take with us into the future. [289 pages, $16.00—U.S., or $24.50—Canada. Available in bookstores and on the publisher’s website: www.perseuspublishing.com]

 

Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness, 2nd Edition

By Paul J. Donoghue and Mary Elizabeth Siegel (W.W. Norton & Company, 2000)

This book describes the anguish of coping with illness that others cannot see and provides understanding and practical guidance for coping. [304 pages, softcover, $10.37 plus shipping/handling at www.amazon.com.Also available at other bookstores.]

 

Beyond Chaos: One Man’s Journey Alongside His Chronically Ill Wife

By Gregg Pilburn (Arthritis Foundation, 1999)

An inspiring and thought-provoking book that encourages readers, both healthy and ill, to become open, honest, and courageous in dealing with the sensitive and difficult issues surrounding chronic illness. The author shares his experiences and insights with a unique combination of wit and sensitivity. [320 pages, softcover, $9.72 plus shipping/handling. Available at www.amazon.com]

 

Fibromyalgia-Related Conditions

 

Conquering Irritable Bowel Syndrome

By Nicholas Talley, MD, PhD, Professor of Medicine at the Mayo Clinic College of Medicine and Consultant in the Division of Gastroenterology and Hepatology at Mayo Clinic, Rochester, MN (BC Decker, 2006)

International authority Nicholas Talley provides a friendly and highly informative discussion of irritable bowel syndrome (IBS) which is useful to both patients and primary care physicians. He clearly explains what is known about IBS: its characteristics, its causes, and the treatments that work. His text offers a useful reference to individuals with fibromyalgia who are troubled by disabling IBS symptoms. [Softbound, 198 pages. Available from the publisher at: www. bcdecker.com or at www.anadem.com.-- $24.95 (U.S.) $27.95 (Canada)]

 

The Dry Eye Remedy: The Complete Guide to Restoring the Health and Beauty of Your Eyes

by Robert Latkany, M.D.(Hatherleigh Press, 2007)

A board certified opthalmologist who is Founder and Director of the Dry Eye Clinic in New York. Dr. Latkany graduated from Columbia University and the Boston University School of Medicine. His book includes chapters on understanding dry eye disorders, restoring your eye health at home, life-style and nutrition, treatments for dry eye (medicines, hormone therapy, punctal plugs, and surgery), as well as future trends and research. [Paperback, 240 pages. Available from www.hatherleighpress.com and from www.Amazon.com.]

 

Taking Control of TMJ

Your Total Wellness Program for Recovering from Temporomandibular Joint Pain, Whiplash, Fibromyalgia, and Related Disorders

By Robert O. Uppgaard, D.D.S. (New Harbinger Publications, 2005)

This self help guide offers a thorough, reader-friendly introduction to temporomandibular joint (TMJ) pain and dysfunction and discusses the inter-relationship between TMJ, myofascial pain syndrome, fibromyalgia, and mandibular whiplash. It is particularly useful in providing a set of conservative, gentle exercises (complete with illustrations) to stretch or strengthen the jaw and surrounding muscles. Also included is information on proper posture, diet, general exercise, and stress management. The previous May 2004 edition has been reprinted with a new section in the introduction entitled, "How To Jump Start Treatment" which teaches the reader three valuable techniques for TMJ management that can be used immediately. Of Uppgaard’s book, John W. Witzig, D.D.S., President of the TMJ Association of America, writes: "This powerful book is the first of its kind and will unravel the mysteries and answer your questions regarding TMJ disorder. It is a virtual goldmine of information about a previously misunderstood problem affecting millions of people." [184 pages, softcover, $14.95. Available at bookstores or online at: www.newharbinger.com]

 

Face the Pain: The Challenge of Facial Pain

By Wesley Shankland, II, D.D.S., Ph.D., with James Boyd, D.D.S., and Devin Starlanyl (Omega Publishing Co., 2000)

Dr. Shankland offers clear explanations of more than two dozen medical/dental conditions which cause pain and other symptoms in the face, head, and neck. He also discusses several benign conditions which can lead to more serious problems. Of particular interest to FM patients are chapters on myofascial pain syndrome, burning mouth syndrome, bruxism, TMJ, and of course, FM, itself. Also included are overviews on trigeminal neuralgia, odontalgia, periodontal pain, neuralgia induced cavitational osteonecrosis, sinusitis, orofacial pain, and a variety of craniofacial pain disorders. Explanations on the clinical features of these disorders are offered in plain language, along with information on diagnosis and treatment approaches. Whether you are trying to narrow down the potential causes of your chronic facial pain or seeking to understand a diagnosis you have already received, this book is an excellent resource. [249 pages, softcover, $21.95 plus $2.50 shipping/handling. Payment may be made by Visa/Mastercard, money order, or cashier’s check (no personal checks, please). Mail order to: Dr. Wesley Shankland, TMJ & Facial Pain Center, 158A Commerce Park Drive, Westerville, OH 43082-7935. Order forms are available from Dr. Shankland’s website: www.drshankland.com]

 

The Interstitial Cystitis Survival Guide

By Robert Moldwin, M.D., F.A.C.S. (Interstitial Cystitis Association, 2001)

This popular new handbook, written by a member of the Medical Advisory Board of the Interstitial Cystitis Association (ICA), contains the latest treatment options for interstitial cystitis (IC) and a variety of effective coping strategies. Included are: (1) How to obtain an accurate diagnosis; (2) Current medications and their side effects; (3) The role of diet and nutrition; (4) Alternative approaches to managing symptoms; (5) How to deal with painful sex; (6) State-of-the-art surgical techniques…and much more. Also included is a chapter, "Support for the IC Patient", by Vicki Ratner, M.D., Founder, President, and Chief Medical Officer of the ICA. [236 pages, $14.95 plus shipping/handling. To order, visit the ICA's website at: www.ichelp.org or call: (800) HELP-ICA.]

 

Numb Toes and Aching Soles: Coping with Peripheral Neuropathy

By John A. Senneff (MedPress, 1999)

This book is a detailed exploration of the treatments currently available for peripheral neuropathy (PN), a group of often debilitating disorders which occur when sensory or motor nerves in the peripheral nervous system are damaged. After two introductory chapters which consider the symptoms, diagnostic workups, known causes, and the physiological mechanisms involved in PN, Senneff presents the reader with discussions of available treatments. These include traditional prescription drugs and commonly accepted medical procedures as well as alternative treatments (i.e., biofeedback, acupuncture, therapeutic touch, etc.), nutritional therapy (i.e., herbs, vitamins, minerals, and other supplements), and experimental and "unapproved" treatments. A final chapter also offers information on exercise, diet, sleep, foot care, and more. Of special interest are the narratives he has compiled in which PN sufferers relate their personal experiences, both pro and con, with particular medications or treatment approaches. [289 pages. Softbound edition--$19.95, casebound--$29.95, plus $4.00 shipping/ handling. To order, write: MedPress, P.O. Box 691546, San Antonio, TX 78269. Phone: 888/MED-9898. Website: www.medpress.com. Also available at: www.amazon.com. All major credit cards accepted.]

Also from John Senneff: Numb Toes and Other Woes: More on Peripheral Neuropathy (MedPress, 2001) and Nutrients For Neuropathy: How To Use Natural Supplements To Treat The Severe Pain And Other Consequences Of Peripheral Neuropathy (MedPress, 2002).

 

Freedom Regained: Female Urinary Incontinence Can Be Overcome

By Jong Choe, M.D. (Anadem Publishing, Inc., 1999)

For years, women have suffered in silence with the dreaded problem of urinary incontinence. Dr. Choe's approach gives the reader a clear understanding of human anatomy in this part of the body, outlining the areas affected and the types of treatments available for each condition. Director of the Continence Center of the University of Cincinnati Medical Center, Dr. Choe is a nationally recognized authority on incontinence and is widely published in academic journals. While there is no mention of fibromyalgia in the book, FM patients will learn what incontinence is, how a diagnostic workup is done, how medications and treatment devices are used, as well as how to manage diet and exercise. For those who require surgery, options are discussed. This book offers clear and concise information in an easy-to-read format which includes 70 drawings and charts. [238 pages, softcover, $25.20 plus $3.75 shipping/handling per book. Mail check/money order or Visa/Mastercard information to: Anadem Publishing, Inc., 3620 North High Street, Columbus, OH 43214. Phone: (800) 633-0055, or fax: (614) 262-6630, or via the Anadem website: www.anadem.com]

 

Special Topics

 

Disability Workbook for Social Security Applicants (Managing Your Application for Social Security Disability Insurance Benefits, Sixth Edition)

By Douglas M. Smith, Attorney at Law (Physicians' Disability Services, Inc., Revised 2005)

This valuable workbook answers such questions as: What is Social Security Disability Insurance? How do I prove disability? How do I appeal when benefits are denied? How do I get and organize evidence? How do I monitor my case? How do I respond to continuing disability reviews? Includes worksheets, charts, frequently asked questions, appendices, and more. [141 pages, softcover, $19.95. Available for sale at the website of Physicians’ Disability Services: www.disabilityfacts.com and at www.amazon.com]

Also by Doug Smith: PdS Disability Facts and Social Security Trends, a quarterly newsletter designed to keep you abreast of changes in the laws, regulations, and policies related to Social Security Disability. Published in newsletter format, it offers insights on proving disability, exploring income-increasing opportunities without losing your benefits, and much more. [$19.95/year. Send check/money order to: Physicians' Disability Services, Inc., P.O. Box 827, Arnold, MD 21012, or order online at: www.disabilityfacts.com]

 

A Parents' Guide To CFIDS

(How To Be An Advocate For Your Child With Chronic Fatigue Immune Dysfunction Syndrome)

By David S. Bell, M.D., FAAP; Mary Z. Robinson, M.S.Ed.; Jean Pollard, A.S.; Tom Robinson, M.S., CAS; and Bonnie Floyd, M.A. (The Haworth Medical Press, 1999)

This book is written by a leading expert on CFS/CFIDS along with the mothers and fathers of young people with CFIDS. It not only covers general topics such as symptoms and diagnosis but also addresses personal/family issues such as coping. In addition, it contains a comprehensive discussion of school issues and gives parents suggestions on how to get their children the education they need. The book presents many helpful guidelines including how many school hours a child with CFIDS should take, whether (s)he needs extra time to complete tasks, and how parents can work with their child's school. The appendices are filled with sample letters, tips, and resources. [161 pages, softcover: Order new or used from www.amazon.com]

 

Pediatric Chronic Fatigue Syndrome

By Kenny De Meirleir, MD, PhD (Belgium) & Neil Mcgregor, BDS, MDSc, PhD (Australia) & Elke L.S. Van Hoof, PhD, ClinPsch. (Belgium) [The Haworth Medical Press, 2006]

This valuable resource considers the medical and psychological impact that chronic fatigue syndrome has on children and adolescents. It also provides criteria for the first-time diagnosis of pediatric CFS as developed by the International Association of Chronic Fatigue Syndrome Pediatric Case Definition Working Group. Treatment guidelines are also offered. [Hardback, available new and used at www.amazon.com]