Resources For Young People With Fibromyalgia

http://home.bluecrab.org/~health  "For Parents of Sick and Worn-out Children" covers fibromyalgia, CFS/CFIDS, Lyme disease, and several other chronic conditions

http://mwilliamson.com/children.htm  Excerpt from author Miryam Williamson's book, Fibromyalgia: A Comprehensive Approach

www.geocities.com/HotSprings/Spa/3579  Website of a young person with fibromyalgia and CFS/CFIDS

www.nichcy.org  NICHY--National Information Center For Children And Youth With Disabilities: An information clearinghouse which provides disability information and has extensive and easy-to-understand resource listings. Or write: NICHY, P.O. Box 1492, Washington, DC 20013-1492. Phone: (800) 695-0285

www.ncf-net.org/patient-physician.htm#Education  "Guidelines for Schools: Understanding and Accomodating CFIDS and FMS," a publication of the National CFIDS Foundation

www.ncf-net.org/patient/patient-education.htm  "CFIDS: Educational Rights, Responsibilities and Options," by Michelle L. Banks MS.ed, a publication of the National CFIDS Foundation

www.finaid.org/otheraid/disabled.phtml  Information about financial aid and fellowships (including loans, scholarships, military aid, and savings) for students with disabilities

www.abilityinfo.com/category/student.html  Abilityinfo.com—National and International Student Resources

www.disabledstudents.org  National Disabled Students Union—a national, cross-disability, student organization dedicated to social justice

www.coveringkids.org  Covering Kids & Families—-a national program which works to reduce the number of uninsured children in the United States

A Parents' Guide to CFIDS: How To Be An Advocate For Your Child with Chronic Fatigue Immune Dysfunction Syndrome, by David S. Bell, MD, FAAP; Mary Z. Robinson, MDEd; Jean Pollard, AS; Tom Robinson, MS, CAS; and Bonnie Floyd, MA. (1999) The Haworth Medical Press (www.haworthpress.com). Although written for the parents of children with CFIDS, this book has a great deal of pertinent information for fibromyalgia, too. Includes chapters on family life, social life, coping, and relationships with doctors, as well as an excellent section on school and education. Also contains a comprehensive resource section in the back with the names/addresses of organizations to contact and explanations of the legislation affecting sick and disabled children. [Hard Cover: ISBN: 978-0-7890-0631-0, Soft Cover: ISBN: 978-0-7890-0711-7]

Pediatric Chronic Fatigue Syndrome, edited by Kenny L. De Meirleir, MD, PhD—Brussels, Belgium; Neil R. McGregor, BDS, MDSc, PhD—Victoria, Australia); and Elke L.S. Van Hoof, PhD, Clin Psych—Brussels, Belgium (2006) (1999) The Haworth Medical Press (www.haworthpress.com). This valuable new resource considers the medical and psychosocial impact that chronic fatigue syndrome (CFS) has on children and adolescents. It also provides criteria for the first-time diagnosis of pediatric CFS as developed by the International Association of Chronic Fatigue Syndrome Pediatric Case Definition Working Group. Treatment guidelines are also offered. [Soft Cover: ISBN-13: 978-0-7890-3532-5.]