Patient Assistance: offers a wide variety of leads on free clinics, programs that help with co-payments for chronic diseases, and prescription-assistance programs. Website: www.patientassistance.com
HelpWithPayingBills: A “human-compiled” directory of bills assistance programs by state, popular cities, and popular counties. Website: www.helpwithpayingbills.org
National Council on Independent Living (NCIL): a national membership association for independent living centers and supporters. NCIL can provide referral to a local program to consumers, current practical information to professionals, and advice to persons interested in starting an independent living center. Website: www.ncil.org
The Eldercare Locator: A nationwide service of the U.S. Administration on Aging that connects older Americans and their caregivers with information on senior services for older adults and their families. Website: www.eldercare.gov
Caregiver Action Network: Supports, empowers, educates, and advocates for the more than 90 million Americans who care for ill, aged, or disabled loved ones. Website: http://caregiveraction.org
Social Security Disability
Social Security Administration: Official government agency which administers SSDI and SSI. Website: www.ssa.gov
NOSSCR Article On Fibromyalgia & SSDI/SSI: In the ARTICLES section of this website, you will find, "Eligibility for Social Security and SSI Disability Benefits Based On Fibromyalgia," an article written by Barbara Silverstone, Staff Attorney for NOSSCR, for the National Fibromyalgia Partnership’s quarterly publication, Fibromyalgia Frontiers, which you are welcome to print.
Social Security Advisory Service: Offers information about Social Security but is not affiliated with the Social Security Administration. Website: www.ssas.com
Disability Workbook for Social Security Applicants, Eighth Edition: Book by Douglas M. Smith, Attorney at Law (Physicians’ Disability Services, Inc., Revised March 2012). Doug Smith has been practicing Social Security Disability law since 1983. His book answers such questions as: How do I prove disability? How do I get and organize evidence? How do I monitor my case? How do I appeal when benefits are denied? How do I respond to continuing disability reviews? Available at the website of Physicians’ Disability Services: www.disabilityfacts.com
General Legal/Disability Assistance
Dial 2-1-1: 2-1-1 provides free and confidential information and referral. Call 2-1-1 for help with food, housing, employment, health care, counseling, and more. Go to: http://211.org and enter your zip code and city/state. Learn more about 2-1-1 by visiting www.211us.org
Medicare Rights Center: The largest independent source of Medicare information and assistance in the U.S. Website: http://www.medicarerights.org/
Job Accommodation Network (JAN): Provides free advisory service on accommodations available through the Americans with Disabilities Act – ADA. Website: http://askjan.org or http://askjan.org/media/fibro.html
ADA National Network: Answer questions related to the ADA. Website: www.adata.org/
Worktree.com: Large online job search portal. Website: www.disabled2work.com
BenefitsCheckUP is an online tool that helps thousands of people connect to government programs that can help them pay for prescription drugs, health care, utilities, and other needs. Website: www.benefitscheckup.org
Pharmaceutical Research & Manufacturers of America: Offers a patient assistance program known as Partnership for Prescription Assistance (PPA). PPA helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free. Website: www.pparx.org
RxAssist.org: RxAssist offers a comprehensive database of the patient assistance programs run by drug companies to provide free medications to those who cannot afford them. It also provides practical tools, news, and articles so that health care professionals and patients can find the information they need alll in one place. Website: www.RxAssist.org
NeedyMeds.com: Their mission is to be the best source of accurate, comprehensive and up-to-date information on programs that help people facing problems paying for medications and health care; to assist those in need in applying to programs; and to provide health-related education using innovative methods. Website: www.needymeds.com
Blink Health: committed to saving patients money guaranteed at over 60,000 all major chains and independent pharmacies nationwide including Walgreens, Kroger, WalMart, RiteAid, Target and others. They've developed proprietary technology to group millions of patients together to create the strength to negotiate the lowest drug prices possible. Website: www.blinkhealth.com
NeedyMeds: A national non-profit that maintains a website of information on free programs that help patients who cannot afford medications and healthcare costs. They also make available a free drug discount card that may help you save up to 80% to save on prescription drugs, over-the-counter drugs, medical supplies written on a prescription form. Website: www.needymeds.org
A great deal of excellent information is available on the internet from the U.S. Federal Government if you know where to find it. The following websites offer helpful information.
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), National Institutes of Health (NIH)
Lead institute at the NIH in the funding of extramural, fibromyalgia research. Also has useful consumer information on fibromyalgia, arthritis, and other chronic musculoskeletal pain conditions.
National Center for Complementary and Integrative Health (NCCIH), National Institutes of Health (NIH)
The Federal Government’s lead agency on complementary and integrative health approaches. Their mission is to define, through rigorous, scientific investigation, the usefulness and safety of non-pharmacologic medical interventions for the public. Offers a wide variety of complimentary publications, fact sheets, and regular news updates on products and research.
PubMed Database of the U.S. National Library of Medicine of the National Institutes of Health (NIH)
PubMed comprises more than 22 million citations for biomedical literature from MEDLINE, life science journals, and online books. Perform extensive searches of the medical literature at no charge. http://www.pubmed.gov/
National Academy of Sciences
[Publication] Relieving Pain In America: A Blueprint For Transforming Prevention, Care, Education, and Research, by The Committee On Advancing Pain Research, Care, and Education; Board of Health Sciences Policy, National Academy of Sciences (Washington, DC, 2001). Relieving Pain in America assesses the state of the science regarding pain research, care, and education and offers a blueprint for developing a population-level strategy to increase awareness about pain and its treatments. Copies of this report are available from the National Academies Press, 500 Fifth Street, N.W., Locker 285, Washington, DC 20055. Phone: (800) 624-6242 or (202) 334-3313.
Health information from the National Library of Medicine of the National Institutes of Health. Read about symptoms, causes, treatment, and prevention for over 900 diseases, illnesses, health conditions, and wellness issues. Also provides information on drugs, dictionaries, directories of medical/dental professionals, and hospitals as well as access to organizations, consumer health libraries, and publications.
NIH Office of Dietary Supplements
Offers a wide array of consumer fact sheets and resource information on dietary supplements.
MedWatch Program, U.S. Food & Drug Administration (FDA)
Official federal website for reporting serious problems with FDA-regulated drugs, biologics, medical devices, dietary supplements, or cosmetics. Incident reporting forms available here.
National Council on Disability (NCD)
NCD is a small, independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities. A wide variety of reports on disability-related topics is available at no charge for download and/or printing. http://www.ncd.gov
Fibromyalgia Information Foundation
Offers a wide variety of articles on fibromyalgia-related topics by leading medical experts in the field, as well as exercise videos specifically designed for fibromyalgia patients. http://www.myalgia.com
College Resources for Disabled Students
An online resource offered by BestColleges.com. They note that “according to the National Center for Education Statistics, over 700,000 college students (or 3.5%) have some type of disability. Disabled students may face unique challenges, but they are entitled to the same quality of education as all students. Our guide walks students with learning disabilities through their legal rights, where to find assistance on campus, and provides an extensive list of websites, apps and software resources designed for students' specific needs.”
OTHER CHRONIC CONDITIONS RELEVANT TO FIBROMYALGIA
Solve ME/CFS Initiative
P.O. Box 220398
Charlotte, NC 28222-0398
International Foundation for Functional Gastrointestinal Disorders (IFFGD)
700 W. Virginia Street #201
Milwaukee, WI 53217
Interstitial Cystitis Association (ICA)
1760 Old Meadow Road, Suite 500
McLean, VA 22102
Chronic Myofascial Pain & Fibromyalgia Informational Website
Website of Devin J. Starlanyl: http://www.FMCMPD.org
National CFIDS Foundation
103 Aletha Road
Needham, MA 02492
National Vulvodynia Association (NVA)
P.O. Box 4491
Silver Spring, MD 20914-4491
The TMJ Association, Ltd.
P.O. Box 26770
Milwaukee, WI 53226-0770
Restless Legs Syndrome Foundation
3006 Bee Caves Road, Suite D206, Austin, TX 78746
Phone: 512/366-9109 • Website: https://www.rls.org
Fibromyalgia: Abstracts from Selected Journal Articles
The abstracts in this collection are intended to provide doctors and other health professionals with a convenient overview of trends in research on fibromyalgia published in medical journals in each year shown below. The studies were selected from the extensive literature on fibromyalgia so as to cover a wide range of subject in limited space.
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